Summary: A personal account of an eczema sufferer, battling everyday of her life from this chronic skin condition ... she hopes to share this story with you and maybe... just maybe, to find a cure or at least a relief... to free herself from this painful,intolerable itching and burning pain..
Tuesday, September 15, 2009
The Forth Day....
Today, at sahur, I took a dose of 2ml of the liquid. I mixed it with my milo but I can still recognise the bitter sour taste on my tongue. It is still very itchy.. cant control my fingers from touching the blisters or peeling the scales... it felt sooo heavenly good to scratched and scratched. Even better than an orgasm, sometimes! hahahah.... I only stopped scratching when it bleeds of when I starts to feel the stinging pain. The skin feels like burning and warm to the touch... my body will be so warm and the itch usually will spread to the other parts of the body... then I would regret and hated myself for scrathing again and again.. and when it itches again, I will repeat what I did earlier.... oh! such a vicious cyle! such a bad habit, I know! well... who could blame me? I've had this since I was 2 years old! However, today I noticed something.... despite having the itch, the blisters didnt turn black or have thick scales on it anymore.. It looks like the wounds are healing... oh! oh! this could be it.... Or am I hoping to soon??
Healing Crisis??
I started on the Olivenol Begins liquid form on Sunday, 13 September 2009 at 8.30pm. The second doze was at Sahur time, around 5.30 am.. I trying to detect any changes or intensity of the itch that day... so far so good. The itch is bearable.. The third day however was a little bit more itchier that the day before.. so to ease the itch, I took 1 Atarax tablet, once during sahur and 1 after iftar. . The itch has reduce a bit but the blisters looked like they are not swollen and angry anymore, not like before..
Olivenol Livin' Begins
By now, my face was affected by the eczema. The skin on my forehead and chin area are so dry and peeling. I no longer have the smooth skin on my face, formery the only area without the rash. I was depressed. Tried a few creams and lotions, but it didnt give any help. I was getting desperate. Making up my face was so troublesome as I had to really make sure that the scalling doesnt show. It was an impossible task. I looked like an old woman.
Somehow, last month, I found the Facebook website. And in there, I found the Olivenol Triniaire page. Quickly I signed up as their fan. I got excited from reading about the wonderful things that Olivenol could do. I begged by hubby to buy them even though it was quite costly. I had high hopes for this remedy.
The Healing Crisis?
The second day after taking the capsules (two capsules twice a day), I had an intense itch. I continued taking it even though the intense itch was making me crazy.. My fingers were numbed from scrathing. I would be awake at 3pm and started scrathing till the upper most skin is peeled off. Blood oozing from the scrathes dirtied my bed linen in no time. Previously only on my forehad and my legs, now it has spread to the other parts of the body. The more I scratch, the warmer I feel and had to decrease the aircon unit to the max! I didnt tell my hubby about this, coz I was scared that he might scold me (as I was the one who asked him to buy the product in the first place). I wonder if this is a healing crisis, and how long I have to endure this...huhuhu..... god please help!! The skin has flared up already..!
Godsent Gift
Finally, I wrote a note to the distributor and asked whether this was part of a healing crises?? however, they say that it was too early for me to withdraw from the therapy and advised me to continue taking it. They were so committed to help me that they even sent me 2 bottles of the liquid form. I was so grateful to them, and had tears in my eyes when I read their messages. Thank you allah, Thank you for opening up their hearts to help me get better....
Somehow, last month, I found the Facebook website. And in there, I found the Olivenol Triniaire page. Quickly I signed up as their fan. I got excited from reading about the wonderful things that Olivenol could do. I begged by hubby to buy them even though it was quite costly. I had high hopes for this remedy.
The Healing Crisis?
The second day after taking the capsules (two capsules twice a day), I had an intense itch. I continued taking it even though the intense itch was making me crazy.. My fingers were numbed from scrathing. I would be awake at 3pm and started scrathing till the upper most skin is peeled off. Blood oozing from the scrathes dirtied my bed linen in no time. Previously only on my forehad and my legs, now it has spread to the other parts of the body. The more I scratch, the warmer I feel and had to decrease the aircon unit to the max! I didnt tell my hubby about this, coz I was scared that he might scold me (as I was the one who asked him to buy the product in the first place). I wonder if this is a healing crisis, and how long I have to endure this...huhuhu..... god please help!! The skin has flared up already..!
Godsent Gift
Finally, I wrote a note to the distributor and asked whether this was part of a healing crises?? however, they say that it was too early for me to withdraw from the therapy and advised me to continue taking it. They were so committed to help me that they even sent me 2 bottles of the liquid form. I was so grateful to them, and had tears in my eyes when I read their messages. Thank you allah, Thank you for opening up their hearts to help me get better....
Photo Therapy
I had lost faith in my private skin specialist. So I made an appointment to see the specialist in a government hospital. After a few visits, they suggested me to go for phototherapy as my condition was quite severe. I searched in the internet for treatments using phototherapy and it sounds promising. Phototherapy exposes a patient to ultraviolet (UV) light for a controlled amount of time. I was full of hopes and dreamt this will be the miracle cure I've been searching all my life. After all, I have nothing to loose.
I was on the treatment for a few weeks (3 times weekly). Right after the first exposure, my skin became so inflamed. But I stayed on, for another month hoping that it will cure my eczema. My hopes were dashed .... It had worsen my condition. When I was in Bandung for a holiday (3rd week into the treament), my skin was really in a flareup. The bedsheets in the hotel room was dirtied by my blood. I scrathed will be bled so bad.. As soon as I got back, I went straight to the doctor and had them cancelled my phototherapy session. So there goes my hopes....
I was on the treatment for a few weeks (3 times weekly). Right after the first exposure, my skin became so inflamed. But I stayed on, for another month hoping that it will cure my eczema. My hopes were dashed .... It had worsen my condition. When I was in Bandung for a holiday (3rd week into the treament), my skin was really in a flareup. The bedsheets in the hotel room was dirtied by my blood. I scrathed will be bled so bad.. As soon as I got back, I went straight to the doctor and had them cancelled my phototherapy session. So there goes my hopes....
The History
Since I was a small child, I remember my grandparents used to take me to see faith healers of all sorts... they made me bathe in eggs, bathe with flowery water, drink urine (??), and etc, etc.. of course, none work, otherwise I would'nt be writing about this. But they sympathised with me and just couldnt sit still watching me in pain. Everytime I bathe, I used to cry because the stinging pain was so unbearable. It was oozing with liquid and when it dries up, it will be so dry and scalling and when I walked, it will cracked and bled. This usually happens after an episode with an asthma attack. But since this blog is about eczema, so I wont talk about asthma.
When I was schooling, I used to be so embarrased when I had to wear shorts for physical exercise (PE). My classmates would gauked at the blisters behind my knees and they would be laughing. To avoid doing PE, I had my grandmother wrote a letter to my class teacher telling her that I had to be excused from PE as advised by my doctor, as it would aggravate my asthma! it was a brilliant idea, because since then on, my teacher would asked me to wait in the classroom while the other students where doing their PE lessons.
The Treatments...
My first experience with steroid was when I was in Standard six. The good doctor prescribed Nerisone cream and after the first application, it stopped the inflammation and itch. What a miracle! I told myself. For the first time, my skin look great and was so smooth like a baby's bottom! I was on it for a few years but later on my skin became immune to it. The battle has started again....
From then on, I was on every type of steroid cream in the market. I also switched a few skin specialist along the way.. At one time, I visited Dr Ting in Jln Imbi and he had injected Kenacort (I believe) to each blisters. It worked wonderfully! The rashes and blisters were healed in one week.. I was so happy and thought that I was cured, finally... but then, two years later.. suddenly, probably after an allergic reaction to food (it must be prawns), I had another flare up...
I changed another specialist, this time I visited a colleague of Dr Ting, Dr Koh in PJ. He injected me on another steroid, but this time not on the blisters but on the buttock. This too worked fine for another three years, but as time goes by, the reaction were reduced. By this time, I noticed that I had knee pains and climbing staircase was hell! At the orthopedics, after an xray, they found out that I have osteoarthritis.. According to them, prolong use of steroid were the culprit that had cause this (OA). Well, now the steroids injection had to be stopped immediately... that was in early 2008. And since then, I am on a lookout for other treatments or medicine for my eczema.. The search has started...
When I was schooling, I used to be so embarrased when I had to wear shorts for physical exercise (PE). My classmates would gauked at the blisters behind my knees and they would be laughing. To avoid doing PE, I had my grandmother wrote a letter to my class teacher telling her that I had to be excused from PE as advised by my doctor, as it would aggravate my asthma! it was a brilliant idea, because since then on, my teacher would asked me to wait in the classroom while the other students where doing their PE lessons.
The Treatments...
My first experience with steroid was when I was in Standard six. The good doctor prescribed Nerisone cream and after the first application, it stopped the inflammation and itch. What a miracle! I told myself. For the first time, my skin look great and was so smooth like a baby's bottom! I was on it for a few years but later on my skin became immune to it. The battle has started again....
From then on, I was on every type of steroid cream in the market. I also switched a few skin specialist along the way.. At one time, I visited Dr Ting in Jln Imbi and he had injected Kenacort (I believe) to each blisters. It worked wonderfully! The rashes and blisters were healed in one week.. I was so happy and thought that I was cured, finally... but then, two years later.. suddenly, probably after an allergic reaction to food (it must be prawns), I had another flare up...
I changed another specialist, this time I visited a colleague of Dr Ting, Dr Koh in PJ. He injected me on another steroid, but this time not on the blisters but on the buttock. This too worked fine for another three years, but as time goes by, the reaction were reduced. By this time, I noticed that I had knee pains and climbing staircase was hell! At the orthopedics, after an xray, they found out that I have osteoarthritis.. According to them, prolong use of steroid were the culprit that had cause this (OA). Well, now the steroids injection had to be stopped immediately... that was in early 2008. And since then, I am on a lookout for other treatments or medicine for my eczema.. The search has started...
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